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Eye Health Organizations Database

Collage of patients and professionals

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American Behcet's Disease Association
P.O. Box 80576
Rochester, MI 48308
631-656-0537 (Administrative Office)
• Provides support and information to individuals with Behcet's disease, symptoms of which include ocular inflammation (uveitis). Publishes a quarterly newsletter and distributes patients pamphlets. Coordinates a pen pal/phone pal network. Provides physician referrals. Coordinates a network of local support groups. Holds an annual international conference.

National Eye Institute (NEI)
National Institutes of Health
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
(301) 496-5248
• Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients.

National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health
Building 31, Room 4C02
31 Center Drive MSC 2350
Bethesda, MD 20892-2350
(301) 496-8190
• Conducts and supports research on the many forms of arthritis and diseases of the musculoskeletal system (bones) and the skin. Distributes information on temporal arteritis (giant cell arteritis), Behcet's disease , and Sjogren's syndrome.

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
(203) 744-0100
(203) 797-9590 (TDD)
• Acts as a clearinghouse for information about rare disorders. Fosters networks between families with similar disorders. Educates the general public and medical profession about the existence, diagnosis, and treatment of rare disorders.

Office of Rare Diseases, National Institutes of Health
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, MD 20892
(301) 402-4336
• Coordinates the Rare Disease Clinical Research Database (RDCRD). Offers information on more than 6,000 rare diseases, current research and clinical trials, and support groups.

The Ocular Immunology and Uveitis Foundation
Five Cambridge Center, 8th Floor
Cambridge, MA 02142
617-494-1431 ext 112
• The Ocular Immunology and Uveitis Foundation is a 501c(3), not-for-profit, tax-exempt organization. Our mission is to find cures for ocular inflammatory diseases, to correct the worldwide deficit of properly trained ocular immunologists, and to provide education and emotional support for those patients afflicted with ocular inflammatory disease. In addition to research, our services include: six support group meetings at the Massachusetts Eye Research and Surgery Institution, online support for patients, children, and families, Pathfinders Program (patient to patient support), Ocular Inflammatory Disease educational guides and documentaries, Fellowship Training, Physician Education and Patient Conferences, and publications (textbooks, articles, monographs).

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Inclusion on this page does not imply endorsement by the National Eye Institute or the National Institutes of Health.

Department of Health and Human Services NIH, the National Institutes of Health