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Eye Health Organizations Database

Collage of patients and professionals

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AMD Alliance International
1929 Bayview Avenue
Toronto, Ontario
(647) 348-9277
• Works to raise the awareness about age-related macular degeneration (AMD) and an understanding of available options for treatment, rehabilitation, and support services. Publishes an educational brochure in five languages.

Association for Macular Diseases
210 E. 64th Street, 8th Floor
New York, NY 10065
(212) 605-3719
• Offers education and information on macular disease through seminars, newsletters, and a hotline. Offers counseling to patients and their families.

BrightFocus Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
• BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer's disease, macular degeneration, and glaucoma. BrightFocus provides free educational materials to people affected by or interested in these diseases, empowering them to take action for themselves and others. Through a toll-free phone number, 1-800-437-2423, people can speak directly with a member of the information services staff, Monday through Friday from 9am to 5pm Eastern time, for answers to questions, support, and referrals.

Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite: 100
Columbia, MD 21046
1-800-683-5551 (TDD)
(410) 423-0600
(410) 872-0639 (TDD)
• The urgent mission of The Foundation Fighting Blindness is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. For a $25.00 annual membership fee, FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. The Foundation also , provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and Usher syndrome. Their newsletter, InFocus, and their e-newsletter, InFocus online. present articles on coping, research updates, and Foundation news. InFocus is published 3 times per year; InFocus online is sent approximately 3 times per year. Their national conference is usually held every year.

Macula Vision Research Foundation (MVRF)
One Tower Bridge
100 Front Street, Suite 300
West Conshohocken, PA 19428-2894
(610) 668-6705
• The Foundationís mission is to find the cause, prevention, treatment and cure for macula vision diseases with the goal of saving sight and providing public education, advocacy and support to those with macular degeneration. Coordinates SupportSight, a service to enhance the quality of life people with macular degeneration through public education programs, small support groups, and a toll-free hotline. Awards the Macula Vision Research Grant to vision scientists and conducts scientific conferences and seminars.

Macular Degeneration Association
5969 Cattleridge Blvd., Suite 100
Sarasota, FL 34232
(941) 870-4399
• The mission of the Macular Degeneration Association (MDA) is to find a cure for macular degeneration disease through funding research, while providing education that will improve the quality of life today, tomorrow and in the future for macular patients and their caregivers.

Macular Degeneration Foundation, Inc.
P.O. Box 531313
Henderson, NV 89053
702-450-2908 (International calls)
• The Macular Degeneration Foundation provides a website ( as an informational tool for patients, universities, insurance companies etc. They also provide a toll-free number that patients may call for mail-out packets or for quick questions. The Foundation has a quarterly newsletter (Magnifier) electronically as well as a mail-out edition for those without internet access. They have a resource consultant available to help patients identify agencies, organizations, or services in specific areas. They are a connection to macular degeneration support groups Nationally and Internationally.

Macular Degeneration Partnership
6222 Wilshire Blvd., Suite 260
Los Angeles, CA 90048
(310) 623-4466
• Provides accurate and timely information to patients and family members about AMD, research, experimental treatments, and clinical trials. Provides connections to a variety of resources for low vision and support. Publishes a monthly online newsletter and offers a free e-mail subscription to AMD Update.

National Eye Institute (NEI)
National Institutes of Health
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
(301) 496-5248
• Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients.

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